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Corvallis, OR, United States
My personal obsession with prion diseases with smidges of music I like and rescue dog advocacy from a disabled Oregonian.

5.11.2007

Sigh

Someone I knew from my internet e-group of other nail-patella syndrome patients committed suicide today. I have a profound sense of grief and shock that compelled me to write. Chronic pain can really wears on one psyche and makes life unbearable at times. Here's a brief description of nail-patella syndrome [via]

Nail Patella Syndrome is a rare genetic disorder involving the bones, joints and connective tissue. Patients may have problems due to limitation of joint mobility, dislocation or both, especially at the elbow and knee where osteoarthritis may eventually occur. Renal impairment is present in approximately 30-50% of cases. Recent evidence suggests that open angle Glaucoma is also part of Nail Patella Syndrome.

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