10.21.2016
9.12.2016
Step Therapy Sucks, and I'm Tired of Being Quiet About It (AWAP Wednesday)
From first hand experience, not having access to appropriate, effective medication when dealing with any acute or chronic illness is cruel and could lead to job loss and homelessness very quickly. Please watch this video.
11.19.2010
Without a cost of living increase for social security recipients (link) it will be increasingly difficult to afford the higher health insurance premiums that awaits me in 2011. When you are pushing 50 years old and haveg a body that pops, snaps, creaks, groans and whines with the gentlest of movements not having health insurance would be a kamikaze mission this kitty wont be deploying.
My health care premiums will be going up 31%, from $76.40 to $100.00 a month. This is for a Medicare Advantage plan that includes a drug plan, preventive dentist visits, and eye glasses. I will be fairly well covered for most health scenarios but I still think a 31% increase is excessive. I wish Obama would have had more cost control legislation built into the new health care bill.
Many people in Oregon have had their Medicare Advantage plan cancelled. They are stuck with shopping for a new plan which is a pain in the ass.
By the end of next month, thousands of senior citizens in Oregon will lose their Medicare Advantage coverage and will have to pay more out-of-pocket costs.Seniors who do not pick a new plan by December 31 will be locked out of Medicare Advantage plans until 2012. Democrats are pushing for a $250 payment for social security recipients to make up for the lack of a cost of living increase. CNN LinkMany senior citizens depend on medicare coverage to pay for their prescriptions, doctor visits, and general health care bills.
"The costs of doctors and things like that nowadays is pretty expensive. I've seen some of the bills I've gotten, and if I had to pay those total myself, I wouldn't be able to," said John Couch, senior citizen. KEZI Link

9.23.2010
Can someone explain to me why the new federal health care rules don't prevent insurers from dropping certain policies?
And.......Supplemental Medicare Drug Plans will see increases in premiums.Regence BlueCross BlueShield has dropped its child-only coverage just in time for a new federal law to take effect.
The new federal law forbids health insurance companies from denying coverage to kids because they are sick.
So more and more big insurance companies like Regence BlueCross BlueShield are getting rid of child-only plans.
Local health care centers say Regence BlueCross BlueShield isn't the only company to drop child-only coverage.
Several others like Cigna and Anthem Blue Cross have as well. KEZI News Link
Millions of seniors face double-digit hikes in their Medicare prescription premiums next year unless they shop for cheaper coverage, a new analysis of government data finds.Premiums will go up an average of 10 percent among the top 10 drug plans that have signed up about 70 percent of seniors, according to an analysis of Medicare data by Avalere Health, a private research firm. Yahoo News Link

6.28.2010
Medicareless is the situation of a terminally ill woman in Portland who has been diagnosed with pancreatic cancer. Despite her federal disability claim being approved, she is cash strapped to treat her illness. How can that happen you ask? Because it takes two years to get on Medicare after your federal disability claim is approved. No health insurance means paying for medicine and doctors out of pocket. It is a system mired with obstacles. It is cruel and punishing. Read this one woman's story. Furthermore, our new health care rules does not address this dilemma many disabled Americans face
Sherman, 57, believed she had bought some time when she qualified for Social Security disability income. But that only brought on the worst wait of all.
"How do people survive this?" she said. "The ripple effect of this is tsunami-huge."
She joined nearly 2 million disabled Americans -- at least 15,000 in Oregon -- who fall into a twilight with the first monthly Social Security disability payment, for they then must wait two years to become eligible for Medicare.
Many of them, like Sherman, have spent their savings on the care necessary to reach a diagnosis and now cannot get private insurance. Sherman spent the early months of her wait hoping that the debate over health care legislation would fix the problem. Oregon Live Link

4.19.2010
Here's a couple stories about Oregon's strong medical marijuana program.
First, despite the disability laws from the ADA and Oregon State's laws employers can still fire an employee who uses cannabis as medicine.
The Oregon Supreme Court has ruled that workers can be fired for using medical marijuana even if they have a card from the state program authorizing its use.Will pot become legal in Oregon soon?The case involves a worker in Eugene who was fired after telling his boss before taking a drug test that he was using medical marijuana approved by his doctor.
In a 5-2 opinion, the court said state law is trumped by federal law that classifies marijuana as a drug with no proven medical value. Yahoo News Link
Marijuana advocates are gearing up to legalize the drug for recreational use in Oregon with a new measure poised to go on the November ballot.
According to their website, the Oregon Cannabis Tax Act would "legalize the sale, possession and personal private cultivation of marijuana." It would also set aside two percent of profits from cannabis sales for commissions that promote industrial hemp biodiesel, fiber, protein and oil. KGW Link

4.04.2010
Washington state makes medical marijuana more accesible. Now physician assistants, naturopths and other qualified medical professionals can prescribe pot.
It adds physician assistants, naturopaths, advanced registered nurse practitioners and others to the list of those who can officially recommend marijuana for patients under the state's medical marijuana law.In Oregon only MD's and osteopaths can prescribe medical marijuana.Under previous law, only physicians were allowed to write the recommendation. KGW Link

3.25.2010
My Physician's assistant prescribed Provigil, a very expensive narcolepsy drug that didn't do a damn thing. I was getting more frustrated by each day. Finally, I decided to try 500 mcgs(micrograms) of Vitamin B12. I was already taking B complex supplements but this dose was above the RDA and was taken under the tongue, or sublingually. I noticed more energy immediately. It's been 3 weeks now and I am up to 1000 mcg. The difference has been enough for me to finish some projects like updating my mad cow news articles which I was behind on. It was last April when I updated those articles and I did them all in one night. I am hopeful for the first time in years...and happy and I sure hope this lasts. For some reason my body doesn't absorb this nutrient through my digestive system so it makes me wonder what else I am not absorbing. (perhaps Vitamin D and calcium, as I have osteopena). Vitamin B12 does not have an upper limit on its toxicity so it is safe, too. I know some of my readers can relate to being tired all the time so I just wanted to offer some hope.

3.24.2010
Cnn currently is running an unscientific poll on medical marijuana:
This is not a scientific poll
No
69%
12763
Yes
31%
5846
Total votes: 18609
Personally, I cringe every time I see anyone using poll data to make a point.Especially when there is a small data set and/or the results are less that 10 units apart. However, the spread in this poll is quite large. People choosing to use cannabis for their severe chronic pain, nausea from cancer treatments, glaucoma or multiple sclerosis to name a few should not be penalized further because they would like to use a non toxic, more natural medicine. The disabled are ostracized enough for not working and sometimes labeled as malingerers or faking it. Lets support disable workers by respecting their privacy. If they medicate off the clock it doesn't concern anyone unless there is repeated and severe abuse.

3.09.2010
I've been thinking about my health insurance premium lately. Higher premiums are in vogue this season so I pulled out the calculator to calculate the percent increase of my premium this year. The exact percentage is enough to trigger a stress migraine..a 47% increase from last year.
I could have picked a particular type of medicare Advantage plan called a special needs plan. This is a health plan for institutionalized patients or people with certain chronic illnesses. The premiums are zero. being the skeptic that I am I thought this sounds too good to be true and i did some research on my health insurer's web page. Being a thorough researcher I found a link to frequently asked questions way down on the right column. (Link) Who would have thought to look in such an obscure place for some very important information?
Can Samaritan Advantage Health Plan (HMO) end my membership and make me leave the plan?
Generally, we cannot ask you to leave the plan because of your health.
Unless you are a member of a Medicare Advantage Special Needs Plan (SNP) for chronic conditions, you cannot be asked to leave your health plan for any health-related reasons...
[...]
If you are a Samaritan Advantage Special Needs Plan (HMO) member and your Medicaid eligibility or benefits change. You will be disenrolled from the Samaritan Advantage Special Needs Plan (HMO) on the first day of the month after a 60-day grace period, which begins on the day your Medicaid eligibility changes. Samaritan Advantage Health Plan (HMO) will notify you in writing about your options.
So, if my health gets worse I can be asked to leave. Isn't that lovely?
After trying to read between the lines on these special needs plans and due to the fact that I might get other health problems I declined the zero premium and instead took the health plan with high premiums and also has vision and dental coverage. I wonder if I made the right decision frequently but I don't always have the energy and/or cognitive ability to understand the details of complicated health plans.
I did a little research on Medicare special needs plans and I can see that these plans have no quality assurance criteria and may lack the coordination of all my health care providers. As a consumer, I wasn't convinced that I would get good care being in a special needs plan. I also didnt like the dissemination of information on how I can be disenrolled. None of their letters sent to me explained how I could be disenrolled. It was only by chance that I found this information through in depth reading of their website.

2.28.2010
There has been a lot written lately about the cost of health insurance premiums being raised this year. As a Medicare Advantage member, my plan went up from $51.90 to $76.40 a month this year. This increase has created more of an economic hardship for me. Remember, social security disability recipients didn't get a cost of living raise this year and probably won't get one next year. I am not sure what the additional $25 is getting me. As far as other medical costs my copays to see specialists went up from $15 to $2o while me primary care physician copays remain at $10 a visit. I am thankful for the medicare Part D plan where my copays for generics are $2.50 and $6.30 for non generics. I am pleased that I only have to pay $10 to visit my doctor as that's where a lot of preventive care is done. The reason my drug costs are so low is that I am on the low income subsidy. Right now I am trying a drug for narcolepsy, called Provigil. The price at the pharmacy is $545 for a 30 day supply. So, my two most expensive meds are my migraine meds (sumatriptan sucinate) and the Provigil. That is roughly $730 a month for just two much needed medications. I am one of the fortunate ones though, There are many more people dying from lack of health care than is morally justifiable. We have not addressed this crisis adequately. Reading the following figures makes my heart ache for humanity as these are life/death issues of extreme importance. Reading this article literally makes my eyes tear up.
As members of the Obama administration and Congress met on Thursday to try to find common ground on health care, a new report warned that without comprehensive legislation, more than 275,000 adults nationwide will die over the next decade because of a lack of health insurance. Nearly 14,000 of those deaths would occur in New York State. NYT LinkThe article goes on to say that 68 people die every day for lack of health care. I want to stay rationale about this but our legislature is literally killing off people while they enjoy the full benefits of generous health care benefits. The injustice of this just crushes me.
If you have the means please donate to a blogger who is waiting on his social security disability claim. Mine took 3 years to get accepted and was a very difficult time in my life. Amygdala
If you can afford a computer and an internet connection you can really help someone who needs it.

12.07.2009
I was able to get a written prescription for a companion dog. This means that I am able to rent anywhere, even if there is a no pet policy. It also means no pet deposit. My dog, Sera, means the world to me. For more information on emotional support animals and service dogs, read this.
Advocates and professionals have long recognized the benefits of assistive animals for people with physical disabilities, including seeing eye dogs or hearing dogs who are trained to perform simple tasks such as carrying notes and alerting their owners to oncoming traffic or other environmental hazards. Recent research suggests that people with psychiatric disabilities can benefit significantly from assistive animals, too. Emotional support animals have been proven extremely effective at ameliorating the symptoms of these disabilities, such as depression and post-traumatic stress disorder, by providing therapeutic nurture and support.
The Fair Housing Amendments Act of 1988, Section 504 of the Rehabilitation Act of 1973, and Title II of the Americans with Disabilities Act protect the right of people with disabilities to keep emotional support animals, even when a landlord's policy explicitly prohibits pets. Because emotional support and service animals are not "pets," but rather are considered to be more like assistive aids such as wheelchairs, the law will generally require the landlord to make an exception to its "no pet" policy so that a tenant with a disability can fully use and enjoy his or her dwelling. In most housing complexes, so long as the tenant has a letter or prescription from an appropriate professional, such as a therapist or physician, and meets the definition of a person with a disability, he or she is entitled to a reasonable accommodation that would allow an emotional support animal in the apartment.

11.23.2009

Alter-Abled News
advised me to go off of it and take Bextra instead. Now I come to find out that I was put at risk
The significant cardiovascular risks linked to Vioxx could have been identified nearly four years before the anti-inflammatory medication was taken off the market, a new study has concluded, but consumers and physicians didn't have access to such information at the time. LA Times Link
10.10.2009
Support The Troops...We Will Need Them To Overthrow The Government
Many people with chronic fatigue syndrome are infected with a virus derived from mice, suggesting the germ may cause the mysterious and exhausting disease.
Chronic fatigue syndrome, which affects a million or more U.S. residents, causes chronic exhaustion, sleep and memory problems and general aches and pains. It is the second disease linked to xenotropic murine leukemia virus-related virus, or XMLV. Earlier studies have found evidence of infection by the same virus in a subset of cancerous prostate tumors. While finding the germ doesn't mean it causes those diseases, it suggests that possibility - and makes scientists wonder what other ailments might be linked to the newly recognized virus.
Researchers found evidence of XMRV infection in 68 of 101 tissue samples from chronic fatigue patients, or 67 percent of samples tested. In comparison, the germ was found in less than 4 percent of healthy people tested. While doctors had previously suspected some infection might cause chronic fatigue syndrome, this is the strongest link ever seen to a specific germ, said Judy Mikovits, who led the study, published online by Science magazine. Oregonian Link
It'snice to know that there is a biological cause for some cases of chronic fatigue. I am sick of hearing people suggest that it is all in your head. Here is the Science Link to the article.
Having a dog as my companion has made a huge difference in the quality of my life. Landlords are not supposed to deny disabled people the right to have a companion or service dog, as it should be. Being disabled in this culture is hard enough. Lets support people with physicial or mental challenges by letting them own a pet as long as its well taken care of and the owners pick up their poop.
A St. Helens landlord must let tenants with mental disabilities keep assistance dogs to help them cope with their conditions, according to the terms of a settlement reached Friday in a federal civil rights lawsuit.
The government sued Ronald A. Lucas and R.A. Lucas Developments LLC last year to ensure compliance with the federal Fair Housing Act after Lucas denied tenant Marilyn Dirks' request to own a dog to improve symptoms of her mental disabilities.
Friday's agreement requires Lucas to create and follow a policy that shows he adheres to the Fair Housing Act. The federal law requires landlords to make reasonable accommodations to people not only for physical disabilities, such as blindness, but for mental problems. Oregonian Link

10.06.2009
Interesting article in the New York Times today on the health benefits of pets.....
“The human-animal bond bypasses the intellect and goes straight to the heart and emotions and nurtures us in ways that nothing else can,” said Karin Winegar, whose book “Saved: Rescued Animals and the Lives They Transform” (Da Capo, 2008) chronicles human-animal interactions. “We’ve seen this from coast to coast, whether it’s disabled children at a riding center in California or a nursing home in Minnesota, where a woman with Alzheimer’s could not recognize her husband but she could recognize their beloved dog.” NYT LinkHaving a dog has alleviated my depression immensely. How? I don't know or can't find words to explain it. It just makes a difference. By the way, I am also working on making a park in Corvallis an official off leash dog area (Porter Park). The interaction between dog lovers and pets has given me a strong connection with others in my community that wasn't there before.
10.05.2009


The World is a Very Stupid Place....
So, I get home and call the bank manager and complain about the crappy customer srvice I got as a disabled person. He apologized and said that was incorrect I should be able to get a roll of qurters thru the drive thru window drawer. He said he would talk to his teller staf and correct the problem. Sheeesh.

9.29.2009
Thank you Ron Wyden for voting yes on the public option amendment even if it didn't pass. Here is a statement from his website.
The legislation before us currently does not offer enough real competition to keep Americans from continuing to be abused by health insurers and held captive by large employers. Without the ability to hold insurers accountable for their costs and quality of service, without the ability to get a better deal and stop the ongoing erosion of wages, most working families will be no better off after this bill passes than they are today. While I have some concerns about using Medicare reimbursement rates for the public option, I have far deeper concerns about the current shortage of real choice and real reform in this health bill. I cast my vote for public option as a vote for choice and reform.On Democracy Now today, Paul Hochfeld, an emergency room doctor from Corvallis, Oregon was featured. Dr. Hochfeld and a group of Oregon doctors are on a "Mad as Hell Tour" promoting single payer health insuance. Why is he mad as hell?
Well, a group of Oregon doctors are really dismayed and disgusted by the healthcare reform debate that’s not happening in Washington. And what we’re mad about is that our legislators are partnering, really partnering, with the industry to manipulate public policy so it’s more about profits than health.
We have a completely dysfunctional healthcare system, that to the—non-system. To the extent that it’s designed, it’s designed to service the insurance industry and the drug industry. And we waste 20 percent of all of our healthcare dollars on insurance activity, manipulating money, and fighting over money, and it doesn’t add anything to the product. The insurance companies don’t add anything to health. They complicate the lives of providers. They waste 20 percent of all of the money. DemocracyNow Link
The Mad As Hell Doctors, "where the rubber gloves meet the road" will be hosting a Rally in Washington DC on Septemebr 30th. Link

8.26.2009
I got a letter several weeks ago from Samaritan Advantage Health Plan, my supplemental Medicare Insurance provider. They wanted me to join a "Special Needs Plan" a new health insurance plan that has no premiums. It was offered to folks who are eligible for the low income subsidy. It sounded too good to be true. After scouring their web site for more information I could not believe what I discovered..
Unless you are a member of a Medicare Advantage Special Needs Plan (SNP) for chronic conditions, we cannot ask you to leave your health plan for any health-related reasons. LinkUmmm, so i join up but you can ask me to leave because I have chronic conditions. Like WTF? I am sure glad I read this web page, damn insurance companies. And some people say we have the best health care in the world. Bullshit.

I'm going to have to learn how to live on a stagnant income for another two years or find a part time job that doesn't mind hiring someone who uses too much sick leave and who is chronically fatigued.. A blue moon is more likely to happen in this poor economy.
Millions of older people face shrinking Social Security checks next year, the first time in a generation that payments would not rise. The trustees who oversee Social Security are projecting there won't be a cost of living adjustment (COLA) for the next two years. That hasn't happened since automatic increases were adopted in 1975. Yahoo News Link![]()
8.10.2009
Can't walk too far
my eyes see spots
there's too much pain
and its too frigging hot
My glass is empty
all I see is a cup.
My boyfriend done left me
Said I'm all messed up.
It's one giant freak show
the ole USA
but I'm staying to fight
in my own little way.
ann 7/2/06